So we went to see Dr Book today, and where do I begin. I won't know her lab results until tomorrow, but the fact that although her poop has color it is still pale, her jaundice hasn't gone away, her liver is firm (not good) and her spleen is enlarged things are not looking good. The Dr said that her surgery seems to have had an intermediary effect. That is, she has gotten some bile flow, but not enough to keep her liver healthy. So she will definitely need a liver transplant. It could be a year from now, two years, or maybe, if we are lucky, even five years. We will watch her closely over the next few months to gauge better when transplant will need to take place.
On a good note Eden has gained another pound. Which is great because many liver babies have difficulty gaining weight. Also, she will get her PICC line out on Wednesday and taken off a few of her meds. Which will be a nice break. She is still doing well despite everything and is a very happy content baby.
Thank you for your continued prayers and support.