Monday, September 8, 2008

Update on Eden

So we went to see Dr Book today, and where do I begin. I won't know her lab results until tomorrow, but the fact that although her poop has color it is still pale, her jaundice hasn't gone away, her liver is firm (not good) and her spleen is enlarged things are not looking good. The Dr said that her surgery seems to have had an intermediary effect. That is, she has gotten some bile flow, but not enough to keep her liver healthy. So she will definitely need a liver transplant. It could be a year from now, two years, or maybe, if we are lucky, even five years. We will watch her closely over the next few months to gauge better when transplant will need to take place.
On a good note Eden has gained another pound. Which is great because many liver babies have difficulty gaining weight. Also, she will get her PICC line out on Wednesday and taken off a few of her meds. Which will be a nice break. She is still doing well despite everything and is a very happy content baby.
Thank you for your continued prayers and support.

5 comments:

Jared said...

I am sorry to hear that things aren't going as well as we would all like to see. You are in our prayers!

a.men said...

I am so sorry that things are not going as hoped. I am sure that it will be nice to have her off of the meds for now. A welcome relief for sure. I am amazed that she is happy and gaining weight in spite of her challenges! You are definitely in our thoughts and prayers!

mistyp said...

Sounds like there are lots of blessings to be counted, even under the current circumstances! She's gaining weight, good doctors, etc. I know you're being blessed! Keep up the good work! ;)

Saucy Lady said...

I am so sorry. She is so precious. It was so good to see you at the play in Payson a few weeks ago, I thought she looked great, she is a beutiful baby.Good luck let me know if you need anything.

Anonymous said...

You guys are such good parents! What a lucky little girl to have you and Doug. I am sorry to hear that she will need a transplant. Prayers for it being a long way down the road... If we can do anything to help, let us know.
Marquesa and Nick