Tuesday, December 30, 2008

The Weigh In

So Eden had her weigh in yesterday, and thank goodness she has gained some weight. So no feeding tube. Yeah! We did increase the concentration of her formula because she is still under weight. But she is growing some. I just got a call from the nurse who told me her zinc levels are low which could be the cause for her decreased appetite. Their suggestion for this is Cold EZ. Hopefully it won't make her throw up. She has been doing enough of that lately with her other medicine.

The nurse also told me that her total bili is 1.o. That is in the normal range. Woo hoo! Time for some happy dancing. Also some more good news is that she finally let me feed her with a spoon yesterday and I think she actually liked it. That will help with the weight gain too.

And one more thing. Her first tooth broke through on Sunday. This was a huge surprise to me since Seth and Ethan didn't get any until a week before there first birthday. If I can get a picture of it I will post it.

Thanks again for all of your prayers and support. I know that many prayers have been answered on Eden's behalf in the past year and pray that this next year will offer more of the same.

Thursday, December 25, 2008

Merry Christmas

Send your own ElfYourself eCards

Sunday, December 21, 2008

Johnson Family Christmas Party


Me and Eden getting ready for dinner.


Doug with a new game for the Wii.


Look at the sweater I got you mom.


Grandma helping Eden open her present.


What did you get Grandpa?


Uncle Jason and Eden.


Yummy paper!


Aunt Carrie and Ethan.


Seth saying give me the presents.

There are no pictures of Uncle Jeffy because he was the one behind the camera. Thanks for taking all the cute pictures.

Tuesday, December 16, 2008

Bring On The Calories!


So it has been a while since I've blogged and I have tons of pictures to post, but that will have to wait until after I get my house cleaned. I do want to take a minute to post the latest Eden update after her check up yesterday. She was a trooper. She had to fast for an ultrasound. Which did not make her very happy. (Fasting nor the ultrasound.) Once she got used to it the ultrasound went well, and everything looked good. She had good blood flow, and no portal hypertension. Woo hoo!

Her check up with the Dr. went well and her labs look pretty good. Her total bili was 1.6. (That's almost to the high end of normal. :) Her albumin (a protein produced by the liver) was up to 3.3. Low albumin can contribute to ascites. BTW her ultrasound showed no excess fluid in her belly. Yay for diuretics and answered prayers.

The only down side to our trip yesterday, other than having to get poked twice for labs, was the issue of Eden's growth. Her weight is off the charts and not in a good way. Twelve somthing pounds just doesn't cut at seven months old. I have been worried about her eating habits for some time. She won't eat baby food and will only nurse for 5-7 minutes at a time. So after talking with a nutritionist we have a plan. She is now on a medication to help stimulate her appetite, plus we are now bottle feeding her so she can get extra calories. And as for solids the nutritionist recommended cheese puffs, sugar, butter, cheese, etc. The more calories the better. She has two weeks to gain weight or its feeding tube time, and we don't want that. But I'll do whatever it takes. Dr. Book said she is still hopefull this liver will work for her for many years to come, but she needs to get better nutrition right now in order for it to heal.

So when you see me feed my baby junk food. Don't worry. It's just what the Dr ordered.