Eden's Story

In May of 2008 we welcomed our sweet little girl into our family. After twin boys we were so excited to be adding a girl to our clan. Aside from being on the small side, 5lbs 9oz, and a little jaundiced she appeared healthy. However, at her two month check up she was still jaundiced. Her pediatrician ordered some blood tests and called me back the same day to say that something was wrong with her liver. After about a week of testing it was determined she had Biliary Atresia, and the Kasai procedure was performed to create a pathway for bile to flow from her liver. Eden's Kasai was partially successful in that she was eventually able to drain the bile from her liver and clear her jaundice, but her liver was already showing signs of damage. In the months following her diagnosis and surgery she developed ascites, three bouts of cholangitis, a decreased desire to eat which led to dehydration and an NG tube, and a variety of other ailments. This eventually culminated in her being placed on the UNOS wait list for a liver transplant. Rather than wait several months for Eden to receive a cadaver liver we made the decision to that I would go forward with the work up to be a live donor for her. Fortunately, I was a suitable match and on November 10, 2009 Eden received the gift of a healthy pink liver. Since her transplant she has come so far. She is now walking and getting into all kinds of mischief which she has undoubtedly learned from her brothers. We don't know what is in store for us in the months and years to come, but we a grateful for where we are today and for those who have helped us get here. As always we are putting our trust in God.